Monday, March 21, 2011

World Down Syndrome Day and a Birthday

Today is World Down syndrome Day.
World Down Syndrome Day takes place on 21 March every year. This date (21/3) represents the 3 copies of chromosome 21, which is unique to people with Down syndrome.








Here is my Ruby.

 
Today is also my son's 6th birthday.
 

Sunday, March 13, 2011

Sunday Verse

Fanny Crosby was blinded as an infant by an incompetent doctor but she didn't let her blindness stop her.She wrote more than 8,000 hymns.
As a child she wrote :
Oh what a happy soul I am,
Although I cannot see;
I am resolved that in this world
Contented I will be.

How many blessings I enjoy,
That other people don't;
To weep and sigh because I'm blind,
I cannot, and I won't."



Blessed Assurance
by Fanny Crosby,1873

  1. Blessed assurance, Jesus is mine!
    Oh, what a foretaste of glory divine!
    Heir of salvation, purchase of God,
    Born of His Spirit, washed in His blood.
    • Refrain:
      This is my story, this is my song,
      Praising my Savior all the day long;
      This is my story, this is my song,
      Praising my Savior all the day long.
  2. Perfect submission, perfect delight,
    Visions of rapture now burst on my sight;
    Angels, descending, bring from above
    Echoes of mercy, whispers of love.
  3. Perfect submission, all is at rest,
    I in my Savior am happy and blest,
    Watching and waiting, looking above,
    Filled with His goodness, lost in His love.



Hebrews
Chapter 10
* 22 Let us draw near with a true heart in full assurance of faith, having our hearts sprinkled from an evil conscience, and our bodies washed with pure water.

John 3:16
16For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.

Thursday, March 10, 2011

Cypriot Group Develops Non-Invasive, Prenatal Down Syndrome Dx; Creates Startup to Market Test | PCR Insider | PCR/Sample Prep | GenomeWeb

This testing makes me sad. I'm afraid there will be a lot less beautiful people with Down syndrome in the world.What a truly sad place it will be.




By Ben Butkus

A group of scientists from Cyprus has combined methylated DNA immunoprecipitation and quantitative real-time PCR into a non-invasive, prenatal test that can diagnose Down syndrome with 100 percent sensitivity and specificity, according to a paper published online this week in Nature Medicine.

Go here to read more :

Cypriot Group Develops Non-Invasive, Prenatal Down Syndrome Dx; Creates Startup to Market Test | PCR Insider | PCR/Sample Prep | GenomeWeb

Monday, March 7, 2011

Ruby Can Walk!

Ruby is 31 months old and has started walking.We are so proud of her!

video

Ruby Can!

Saturday, March 5, 2011

Unlocking potential of kids with Down syndrome | SouthCoastToday.com

One of the mother's in this news article had a nurse that was the mother to a child with Down syndrome. That nurse was able to go into the hospital room and give encouragement to the new mom.I wish that someone like this had been available to me when I was in the hospital after having Ruby. I'm thinking of contacting local hospitals and letting them know I would be available to talk with parents who have a new diagnosis of Down syndrome.
I think this is a good article for someone who is expecting a child with Down syndrome.



Unlocking potential of kids with Down syndrome | SouthCoastToday.com

Friday, March 4, 2011

Ruby is Amazing

Ruby just amazes me.Right now as I'm writing this post she is standing at our back door calling our dog,"Angel!" "Where is she?" "Is she?" "Angel?" "Where is the puppy?" Ruby amazes me with her ability to speak. Now she has crawled over to me asking me,"Angel? Is she?" as she points outside our sun room windows,"Where is she?"
 Ruby melts my heart, I can never imagine why I was so sad when I gave birth to her.Any sorrow has been totally replaced with joy and pride in my beautiful daughter.

Wednesday, March 2, 2011

The R-Word Hurts

Recently a friend of my 16 year old daughter came to our house to spend the day with us.While she was in our home she used the word "retarded" several times.This girl is a very nice and funny young woman and she enjoys the company of all of my children,Ruby included.I know she was unaware of how her words made me sick to my stomach and look to see where my precious daughter who has Down syndrome was. I'm glad Ruby didn't know what was being said but the rest of my children did and I wondered what they thought.

You know that little rhyme,"Sticks and stones may break my bones,but words will never hurt me?" Well, that is completely untrue.Words DO hurt.Wont you please think before you speak?

The R-Word

Wordless Wednesday