Ruby had started resisting therapy and I felt like driving for 20 minutes for a crying session was not beneficial. My children and I
Wednesday, May 4, 2011
Ruby is Coloring
I was coloring with my 8 year old daughter Rebecca and Ruby came over and grabbed a crayon and started scribbling coloring,too. I haven't taken Ruby to OT in months but coloring was one of the things they used to try and get her to do.
Ruby had started resisting therapy and I felt like driving for 20 minutes for a crying session was not beneficial. My children and Iplay work daily with Ruby on skills she should be achieving. Taking a break from therapies has helped Ruby to fit into our family life and just be the baby.
Ruby had started resisting therapy and I felt like driving for 20 minutes for a crying session was not beneficial. My children and I
Wednesday, April 27, 2011
In Remembrance of Carly George
I posted this last year on this date and wanted to share it again.I miss Carly and her beautiful smile.I will never forget her.You never get over the death of a child.
Thinking of You with Love
We thought of you with love today,
but that is nothing new.
We thought about you yesterday,
and days before that too.
We think of you in silence,
we often speak your name.
All we have are memories,
and your picture in a frame.
Your memory is our keepsake,
with which we will never part.
God has you in His keeping,
we have you in our hearts.
A million times we`ve wanted you.
A million times we cried.
If love could only have saved you,
you never would have died.
It broke our hearts to lose you.
But you didn`t go alone.
For a part of us went with you...
the day God called you Home.
~Author Unknown
Thinking of You with Love
We thought of you with love today,
but that is nothing new.
We thought about you yesterday,
and days before that too.
We think of you in silence,
we often speak your name.
All we have are memories,
and your picture in a frame.
Your memory is our keepsake,
with which we will never part.
God has you in His keeping,
we have you in our hearts.
A million times we`ve wanted you.
A million times we cried.
If love could only have saved you,
you never would have died.
It broke our hearts to lose you.
But you didn`t go alone.
For a part of us went with you...
the day God called you Home.
~Author Unknown
Wednesday, April 20, 2011
Monday, April 18, 2011
Ruby's hearing test
My husband and I took Ruby to Children's Hospital to have her hearing tested today.I was very pleased with how quickly we were seen.We have been to this hospital before to have Ruby's eyesight tested and were seen very quickly then,too.I was pleasantly surprised because this is a very large hospital and thought it might be a very long wait.
When Ruby's name was called we were taken back into a small soundproof room.My husband sat with Ruby in a chair in the middle of the room with speakers on either side of them.The audiologist played different sounds and called to Ruby through the speakers. Ruby did very well and responded to almost all of the sounds.There were a few very light sounds that Ruby did not respond to.
When the test was over we were told that Ruby showed a very slight hearing loss which may be because of a recent upper respiratory infection that Ruby has been fighting.We were told she would need to see the ENT and then come back for a follow-up hearing test when her cold clears up completely.So overall we were pretty happy.
The audiologist was a very friendly young woman,Ruby liked her very much and hugged her goodbye when it was time to go.
Here are pictures of Ruby in the car on the way to the appointment :
When Ruby's name was called we were taken back into a small soundproof room.My husband sat with Ruby in a chair in the middle of the room with speakers on either side of them.The audiologist played different sounds and called to Ruby through the speakers. Ruby did very well and responded to almost all of the sounds.There were a few very light sounds that Ruby did not respond to.
When the test was over we were told that Ruby showed a very slight hearing loss which may be because of a recent upper respiratory infection that Ruby has been fighting.We were told she would need to see the ENT and then come back for a follow-up hearing test when her cold clears up completely.So overall we were pretty happy.
The audiologist was a very friendly young woman,Ruby liked her very much and hugged her goodbye when it was time to go.
Here are pictures of Ruby in the car on the way to the appointment :
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| "Hi" |
Thursday, April 14, 2011
Help Bring Ian Home
Go and take a look at this Giveaway to help bring Ian home from Eastern Europe! Some very unique necklaces have been donated to help raise the $25,000 needed.I know I would LOVE to own one of these beautiful pieces!
http://bring-hope-home.blogspot.com/2011/04/wear-hope-and-help-us-get-ian-home.html
Here are some pictures of my princess.
http://bring-hope-home.blogspot.com/2011/04/wear-hope-and-help-us-get-ian-home.html
Here are some pictures of my princess.
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| All dressed-up for church |
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| Watching Oswald |
Wednesday, April 13, 2011
Sunday, April 10, 2011
Don't miss The Boy from Baby House 10
Don't miss this story on Dateline tonight.Children like this are why I advocate for adoption.There are so many beautiful children who have great potential being neglected and abused.
Saturday, April 9, 2011
Sissy!
It's Meagan again. :D
I don't think I've wrote on here since we went to South Carolina.. But, anyways, Mom wanted me to write on here today.
Mom's been sick lately, so I was helping her take care of Ruby this morning; I picked her up and she called me sissy for the first time! It was soo cute. ^.^ And last night I was playing with her, and I was hiding under a blanket, and she stuck her head underneath it and said "Hi there!" really clearly. [:
Friday, April 8, 2011
Monday, March 21, 2011
World Down Syndrome Day and a Birthday
Today is World Down syndrome Day.
World Down Syndrome Day takes place on 21 March every year. This date (21/3) represents the 3 copies of chromosome 21, which is unique to people with Down syndrome.
Here is my Ruby.
World Down Syndrome Day takes place on 21 March every year. This date (21/3) represents the 3 copies of chromosome 21, which is unique to people with Down syndrome.
Here is my Ruby.
Today is also my son's 6th birthday.
Sunday, March 13, 2011
Sunday Verse
Fanny Crosby was blinded as an infant by an incompetent doctor but she didn't let her blindness stop her.She wrote more than 8,000 hymns.
As a child she wrote :
Oh what a happy soul I am,
Although I cannot see;
I am resolved that in this world
Contented I will be.
How many blessings I enjoy,
That other people don't;
To weep and sigh because I'm blind,
I cannot, and I won't."
Blessed Assurance
by Fanny Crosby,1873
Hebrews
Chapter 10
* 22 Let us draw near with a true heart in full assurance of faith, having our hearts sprinkled from an evil conscience, and our bodies washed with pure water.
John 3:16
16For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.
As a child she wrote :
Oh what a happy soul I am,
Although I cannot see;
I am resolved that in this world
Contented I will be.
How many blessings I enjoy,
That other people don't;
To weep and sigh because I'm blind,
I cannot, and I won't."
Blessed Assurance
by Fanny Crosby,1873
- Blessed assurance, Jesus is mine!
Oh, what a foretaste of glory divine!
Heir of salvation, purchase of God,
Born of His Spirit, washed in His blood.- Refrain:
This is my story, this is my song,
Praising my Savior all the day long;
This is my story, this is my song,
Praising my Savior all the day long.
- Refrain:
- Perfect submission, perfect delight,
Visions of rapture now burst on my sight;
Angels, descending, bring from above
Echoes of mercy, whispers of love. - Perfect submission, all is at rest,
I in my Savior am happy and blest,
Watching and waiting, looking above,
Filled with His goodness, lost in His love.
Hebrews
Chapter 10
* 22 Let us draw near with a true heart in full assurance of faith, having our hearts sprinkled from an evil conscience, and our bodies washed with pure water.
John 3:16
16For God so loved the world, that he gave his only begotten Son, that whosoever believeth in him should not perish, but have everlasting life.
Thursday, March 10, 2011
Cypriot Group Develops Non-Invasive, Prenatal Down Syndrome Dx; Creates Startup to Market Test | PCR Insider | PCR/Sample Prep | GenomeWeb
This testing makes me sad. I'm afraid there will be a lot less beautiful people with Down syndrome in the world.What a truly sad place it will be.
By Ben Butkus
A group of scientists from Cyprus has combined methylated DNA immunoprecipitation and quantitative real-time PCR into a non-invasive, prenatal test that can diagnose Down syndrome with 100 percent sensitivity and specificity, according to a paper published online this week in Nature Medicine.
Go here to read more :
Tuesday, March 8, 2011
Monday, March 7, 2011
Saturday, March 5, 2011
Unlocking potential of kids with Down syndrome | SouthCoastToday.com
One of the mother's in this news article had a nurse that was the mother to a child with Down syndrome. That nurse was able to go into the hospital room and give encouragement to the new mom.I wish that someone like this had been available to me when I was in the hospital after having Ruby. I'm thinking of contacting local hospitals and letting them know I would be available to talk with parents who have a new diagnosis of Down syndrome.
I think this is a good article for someone who is expecting a child with Down syndrome.
Unlocking potential of kids with Down syndrome | SouthCoastToday.com
I think this is a good article for someone who is expecting a child with Down syndrome.
Unlocking potential of kids with Down syndrome | SouthCoastToday.com
Friday, March 4, 2011
Ruby is Amazing
Ruby just amazes me.Right now as I'm writing this post she is standing at our back door calling our dog,"Angel!" "Where is she?" "Is she?" "Angel?" "Where is the puppy?" Ruby amazes me with her ability to speak. Now she has crawled over to me asking me,"Angel? Is she?" as she points outside our sun room windows,"Where is she?"
Ruby melts my heart, I can never imagine why I was so sad when I gave birth to her.Any sorrow has been totally replaced with joy and pride in my beautiful daughter.
Ruby melts my heart, I can never imagine why I was so sad when I gave birth to her.Any sorrow has been totally replaced with joy and pride in my beautiful daughter.
Wednesday, March 2, 2011
The R-Word Hurts
Recently a friend of my 16 year old daughter came to our house to spend the day with us.While she was in our home she used the word "retarded" several times.This girl is a very nice and funny young woman and she enjoys the company of all of my children,Ruby included.I know she was unaware of how her words made me sick to my stomach and look to see where my precious daughter who has Down syndrome was. I'm glad Ruby didn't know what was being said but the rest of my children did and I wondered what they thought.
You know that little rhyme,"Sticks and stones may break my bones,but words will never hurt me?" Well, that is completely untrue.Words DO hurt.Wont you please think before you speak?
You know that little rhyme,"Sticks and stones may break my bones,but words will never hurt me?" Well, that is completely untrue.Words DO hurt.Wont you please think before you speak?
Thursday, February 24, 2011
CSN Giveaway Winner
The winner of the CSN Giveaway is Monica from Monkey Musings! Congratulations Monica you are the winner of the $40 gift code!
Sunday, February 20, 2011
Chasing Charlotte: Quilt Giveaway
Wont you please go over and enter this Quilt Giveaway to help bring beautiful miss Charlotte home to her family?
Chasing Charlotte: Warm Fuzzies and a Quilt Giveaway
Sunday Verse/In need of comfort
I haven't done a Sunday Verse in a long time so I thought I would do one today.I'm sick with yet another cold and had to miss church this morning and Ruby is still sleeping so I have a few minutes to sit down at the computer.
Last week my husband found out that after working for 18 years at the company he's at he will be getting layed off in October.We are blessed that at least he will have employment for another few months but it is a little scary to think that in a few months we will have no more employment ,and we will miss the wonderful medical and dental insurance that we have.We still have 8 children at home to take care of and little miss Ruby with her disability.
I have been looking through scriptures for verses of comfort and here are some that I have found :
Psalm 34:17
The righteous cry,and the Lord heareth,and delivereth them out of all there troubles.
Isaiah 41:10
Fear thou not ; for I am with thee : be not dismayed ; for I am thy God : I will strengthen thee ; yea, I will help thee ; yea, I will uphold thee with the right hand of my righteousness.
Psalm 34:4
I sought the Lord ,and he heard me, and delivered me from all my fears.
Matthew 6:34
Take therefore no thought for the morrow : for the morrow shall take thought for the things of itself.Sufficient unto the day is the evil thereof.
1 Samuel 2:7,8
The Lord maketh poor,and maketh rich : he bringeth low,and lifteth up.
He raiseth up the poor out of the dust,and lifteth up the beggar from the dunghill,to set them among princes,and to make them inherit the throne of glory: for the pillars of the earth are the Lord's, and he hath set the world upon them.
Psalm 68:19
Blessed be the Lord, who daily loadeth us with benefits, even the God of our salvation.Selah
Psalm 94:19
In the multitude of my thoughts within me thy comforts delight my soul.
There are many,many more wonderful verses of comfort in the Bible,so many that I cannot include them all here.Just writing these few out has been a blessing to me this morning .I hope they are a blessing to you also.
Last week my husband found out that after working for 18 years at the company he's at he will be getting layed off in October.We are blessed that at least he will have employment for another few months but it is a little scary to think that in a few months we will have no more employment ,and we will miss the wonderful medical and dental insurance that we have.We still have 8 children at home to take care of and little miss Ruby with her disability.
I have been looking through scriptures for verses of comfort and here are some that I have found :
Psalm 34:17
The righteous cry,and the Lord heareth,and delivereth them out of all there troubles.
Isaiah 41:10
Fear thou not ; for I am with thee : be not dismayed ; for I am thy God : I will strengthen thee ; yea, I will help thee ; yea, I will uphold thee with the right hand of my righteousness.
Psalm 34:4
I sought the Lord ,and he heard me, and delivered me from all my fears.
Matthew 6:34
Take therefore no thought for the morrow : for the morrow shall take thought for the things of itself.Sufficient unto the day is the evil thereof.
1 Samuel 2:7,8
The Lord maketh poor,and maketh rich : he bringeth low,and lifteth up.
He raiseth up the poor out of the dust,and lifteth up the beggar from the dunghill,to set them among princes,and to make them inherit the throne of glory: for the pillars of the earth are the Lord's, and he hath set the world upon them.
Psalm 68:19
Blessed be the Lord, who daily loadeth us with benefits, even the God of our salvation.Selah
Psalm 94:19
In the multitude of my thoughts within me thy comforts delight my soul.
There are many,many more wonderful verses of comfort in the Bible,so many that I cannot include them all here.Just writing these few out has been a blessing to me this morning .I hope they are a blessing to you also.
Saturday, February 19, 2011
The Ordinary Life of an Extraordinary Girl: I believe....and a GIVEAWAY
Alex's Mom is giving away 2 copies of her book about raising a daughter with Down syndrome.I haven't read her book yet but it sounds great! I love being able to get advice and tips from Mom's who are further ahead in this journey of raising a child with Down syndrome.Go on over and take a look!
The Ordinary Life of an Extraordinary Girl: I believe....and a GIVEAWAY
The Ordinary Life of an Extraordinary Girl: I believe....and a GIVEAWAY
Clarissa's art
Clarissa is a young woman with Down syndrome.She is also deaf,mute,physically handicapped and bipolar.
This article is about how her mother started homeschooling her at the age of 18 and her discovery of her daughter's artistic ability.
Clarissa's art The Manila Bulletin Newspaper Online
This article is about how her mother started homeschooling her at the age of 18 and her discovery of her daughter's artistic ability.
Clarissa's art The Manila Bulletin Newspaper Online
Mother's fury after operation turns sour | HEALTH News
This little boy had some serious complications after having his tonsils removed.
I thought a tonsillectomy was a pretty normal operation for a child with Down syndrome to have.Do you have a child with Down syndrome that has had this operation? How did he or she do after the operation?
Mother's fury after operation turns sour HEALTH News
I thought a tonsillectomy was a pretty normal operation for a child with Down syndrome to have.Do you have a child with Down syndrome that has had this operation? How did he or she do after the operation?
Mother's fury after operation turns sour HEALTH News
Friday, February 18, 2011
Wednesday, February 16, 2011
Another CSN Giveaway
Hey everybody I'm having another CSN giveaway! This time I'm giving away a $40 gift certificate to any CSN store. CSN has lots of great stores to shop at, one of their stores sells Office Furniture . I'm a bookaholic and I just love some of the bookshelves they have.They even have some bookcases with doors which would be great to have especially with little miss Ruby who wants to throw all of our books off the shelves.
If you would like to enter this Giveaway go on over to the Office Furniture link above, have a look around and then come back and tell me about something you like.You can have an extra entry by following my blog.You can have another entry by sharing about my giveaway, just make sure and leave me a comment letting me know you shared it.Make sure I have an e-mail where I can contact you if you are the winner.
I'm ending this giveaway next Wednesday,Feb.23. I will be picking the winner using Random.org.
This Giveaway is open to United States and Canadian residents only.
If you would like to enter this Giveaway go on over to the Office Furniture link above, have a look around and then come back and tell me about something you like.You can have an extra entry by following my blog.You can have another entry by sharing about my giveaway, just make sure and leave me a comment letting me know you shared it.Make sure I have an e-mail where I can contact you if you are the winner.
I'm ending this giveaway next Wednesday,Feb.23. I will be picking the winner using Random.org.
This Giveaway is open to United States and Canadian residents only.
Tuesday, February 15, 2011
Ruby talking on the mouse
I caught Ruby sitting in my bedroom floor playing with my computer mouse.She was putting it up to her ear and saying,"Hello?","Hello?" "Ziz it?"(who is it).She also likes to play with my cell phone but I have to be careful about that because she has figured out how to unlock it and she pushes lots of numbers.Who knows who or where she might call!
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| It's ringing |
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| Hello? |
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| You wanna talk Mom? |
Grandma
I'm going to be a grandma in July! My oldest son called me this morning and told me that they found out the baby is a girl! The name that they have picked out is Alexis.I'm so thrilled to be getting a grandchild!
Sunday, February 6, 2011
Sesame Street board books
Shake a Leg by Constance Allen is one of Ruby's favorite books.I bought it for her several months ago because it has actions to imitate, like honk your nose,pat your head,and many others.When I first started reading it to her I would perform the actions and she would copy me,now when I read it she does most of the actions on her own when she sees the page.The book is small and perfect for her little hands.Another plus is that it's a board book and the pages can't be ripped or crumpled.
When I was looking it up on Amazon I found some other books in this series that I think Ruby will also enjoy like 'Elmo Says'and 'Elmo's ABC'S.'
When I was looking it up on Amazon I found some other books in this series that I think Ruby will also enjoy like 'Elmo Says'and 'Elmo's ABC'S.'
A Perfect Lily: Pure Love Giveaway
My friend Patti is having a super giveaway go over and take a look .If you donate you get a chance to win some great prizes and you will be helping a beautiful child get a forever home : A Perfect Lily: Pure Love Giveaway
Friday, February 4, 2011
Ruby is learning to walk
Ruby has started standing up and sitting down without holding on to anything,she has even taken a few shuffling steps in the last couple of days,and she bear crawls everywhere.I'm so excited!
When Ruby was born and I heard the statistics of when a child with Down syndrome would walk,I thought that I would work with her and she would be one of those super kids with Down syndrome who walked early.Well,I have worked with her,therapists have worked with her,her siblings have helped her, I'm sure that it was all good for her,but Ruby hasn't decided she would walk yet,she is 2 1/2 years old now,and you know what it doesn't matter one little bit to me if she doesn't walk until she's 3 or 4 or whenever.What matters is that she is doing her best,we are giving her the help and love that she needs and she will walk and run when she's ready.What if she can't walk on her own and needs some type of adaptive device to help her? Well that's o.k. too.I'm so proud of my baby!She brings so much joy to our lives.
Here are some pictures of her standing and a video of her bear crawling.In the video you can see the baby gate I had to prop up against the bookshelf to keep Ruby from pulling all the books off,she LOVES to throw EVERY book off that shelf.I'm so proud she can :)
When Ruby was born and I heard the statistics of when a child with Down syndrome would walk,I thought that I would work with her and she would be one of those super kids with Down syndrome who walked early.Well,I have worked with her,therapists have worked with her,her siblings have helped her, I'm sure that it was all good for her,but Ruby hasn't decided she would walk yet,she is 2 1/2 years old now,and you know what it doesn't matter one little bit to me if she doesn't walk until she's 3 or 4 or whenever.What matters is that she is doing her best,we are giving her the help and love that she needs and she will walk and run when she's ready.What if she can't walk on her own and needs some type of adaptive device to help her? Well that's o.k. too.I'm so proud of my baby!She brings so much joy to our lives.
Here are some pictures of her standing and a video of her bear crawling.In the video you can see the baby gate I had to prop up against the bookshelf to keep Ruby from pulling all the books off,she LOVES to throw EVERY book off that shelf.I'm so proud she can :)
Thursday, February 3, 2011
Lois
This sweet little girl had leukemia and she died this morning. Here's a link to her Mother's blog The Daily Lois
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| There's no tragedy in life like the death of a child. Things never get back to the way they were.” Dwight David Eisenhower |
Wednesday, February 2, 2011
For Once in My Life | Independent Lens | PBS Video
Thanks to Amy for sharing with me that the full documentary can be watched here For Once in My Life Independent Lens PBS Video .
For Once in My Life
Last night my husband and I were looking through the t.v. channels trying to find something to watch.We put the t.v. on the public station and started watching a documentary on Independant Lense called ,For Once in My Life. For Once in My Life , is a documentary about the Spirit of Goodwill Band,the band has 28 members all who have different disabilities.One of the young women named Melissa has Down syndrome and she plays the congo drums and tamborine. One of my favorite parts of the film is the interviews with the individual families of the band members.Melissa's mother was told by doctors to put her in a mental institution,that she would never amount to anything,she refused this advice and brought her infant daughter home and began to treat her like she had her other children.
Here is a link to information about this program.The band is terrific! For Once in My Life
Here is a link to information about this program.The band is terrific! For Once in My Life
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