Life with my 11 wonderful children.My youngest daughter Ruby is blessed with Down Syndrome.
Monday, March 7, 2011
Friday, February 4, 2011
Ruby is learning to walk
When Ruby was born and I heard the statistics of when a child with Down syndrome would walk,I thought that I would work with her and she would be one of those super kids with Down syndrome who walked early.Well,I have worked with her,therapists have worked with her,her siblings have helped her, I'm sure that it was all good for her,but Ruby hasn't decided she would walk yet,she is 2 1/2 years old now,and you know what it doesn't matter one little bit to me if she doesn't walk until she's 3 or 4 or whenever.What matters is that she is doing her best,we are giving her the help and love that she needs and she will walk and run when she's ready.What if she can't walk on her own and needs some type of adaptive device to help her? Well that's o.k. too.I'm so proud of my baby!She brings so much joy to our lives.
Here are some pictures of her standing and a video of her bear crawling.In the video you can see the baby gate I had to prop up against the bookshelf to keep Ruby from pulling all the books off,she LOVES to throw EVERY book off that shelf.I'm so proud she can :)
Wednesday, October 6, 2010
What is that thing? 31 for 21 day 7
I found the Magna Doodle like the one we have on Amazon and they also had some other really cool versions ,like a travel version called Doodle Pro Tag - Along and one by another company called a Glodoodle .
Friday, July 30, 2010
More Crawling
It's just so wonderful to see her getting around everywhere and not scrubbing the floor with her belly.A couple of nights after she started crawling I was sitting in our living room, and Ruby had scooted on her belly into our kitchen and then she got up on her hands and knees to crawl and I just started crying.I was so happy!See Ruby can!!
Thursday, July 29, 2010
Monday, June 21, 2010
Eye check and other updates
Ruby has started cruising along our furniture so I'm hoping to see her start trying to walk on her own soon.Although I'm sure as soon as she is walking she will be getting into even more than she does already! She is really starting to pick up on using more sign language and speaking new words.She's so cute and will sign and say "bath" when I change her diaper,thinking that I'm getting her undressed for a bath. :) She is saying "bite" when she sees any of us with food and loves to try and eat what we are eating, but usually she just chews on the food for a bit then spits it out because she has difficulty swallowing food with much texture without gagging.
We had a great time on our visit to the Zoo on Memorial day,which I posted pictures from on my Wordless Wednesday.A couple of commenter's from that post asked if Ruby liked the Zoo and I wanted to answer that ,yes, Ruby was very good at the zoo even though it was an extremely hot day.My husband and I were exhausted by the end of the day and my husband spent $22.00 and a 20 minute wait,just so we could all ride the train back to the front of the zoo, so we wouldn't have to walk all that way to leave.
Ruby enjoyed all the animals and would wave and say ,"Hi!" to them and she also made growling sounds at them.
While we were there I noticed an older couple and their grown children , one of the young women had Down syndrome.I didn't say anything to them and just observed how sweetly the family members all were to this young woman.I saw them several times while we were walking through the zoo,then while we were sitting down to rest, near the giraffes,this same family came over to look at the giraffes and the mother,who was in a wheelchair,noticed Ruby sitting in her stroller."Look," she said to her daughter who had Ds,that little girl is just like you! At first it didn't appear that the daughter noticed Ruby but then after her mother started asking me questions about Ruby she turned and looked at her and her face just looked so sweet and she said,"Look! She like me ,she like me! I just wanted to hug her! We found out her name was Juliette and she was 39 years old,she looked great by the way ,her mother told me that Ruby would return much love back to us as long as we showed much love to her and that she would be a great blessing to our family.She also told me the best advice that she could give me was to not let Ruby do things now while she's 2 that I don't want her to do when she is 21.I don't know why I didn't think to take a picture of Ruby and Juliette together.I could just kick myself.sigh.Their hair was even the same color!
Thank you for all the well wishes to my son Grady on his college acceptance!
Thursday, May 20, 2010
Words
Here is a list of words she can say:
Daddy
Hi
Bye Bye, which usually sounds like Bubye
Hi,Daddy
Baby
See
See it
Op for stop
Happy
Bobble for Bottle
I'm so excited about her speech, and she speaks very clearly, which is a good sign to me that she hears well.I just cherish every accomplishment she makes because I know they don't come easily for her.
Monday, April 26, 2010
Wednesday, February 3, 2010
Ruby Can
She has learned the sign for more and enjoys signing more when we blow bubbles for her.
She clearly says,"op" for stop when she doesn't like something, and a few nights ago told me "No!" and then gave me a beautiful smile when I said it was time to go night,night.
And I'm thrilled to say that last night after we put her to bed in her crib ,she pulled herself up to standing and scared my teenage daughter ,(who Ruby shares a room with),by nearly flinging herself over the rail of the bed! My dear husband had to get a wrench out and lower the mattress before we could safely put her back to bed!
I hope all my blogging friends are doing well,I have had a lot of family drama going on with my older children :) and haven't had much time for blog reading.I was able to attend a missions conference at church last week that was truly a blessing to me and came at a perfect time to help me wade through some of the drama.The missionaries brought wonderful messages and also let us know every night after service how much they enjoyed our little Ruby and her "singing" during our congregational singing :)
Friday, September 18, 2009
New Toy
Vtech Sit-to-Stand Learning Walker:
5 piano keys play music notes
3 colorful spinning rollers
3 shape sorters and light-up shape buttons
Telephone handset, spinning gears and open/close barn door
Friday, September 11, 2009
Ruby's Jazz Hands
Tuesday, August 11, 2009
i did it
Here is Ruby showing off her new shirt and ability.

Wednesday, July 29, 2009
Friday, May 29, 2009
Baby Treadmill -- Kinesiologists Design Tiny Treadmill To Help Balance Baby Steps In Downs Syndrome Infants
Ruby's Physical Therapist has suggested we do treadmill therapy.Below is an article I found on the therapy.What do you think about this?
ScienceDaily () -- Kinesiologsts developed a tiny treadmill to help infants with Downs Syndrome learn to balance themselves earlier. Typically, these children learn how to walk at 24 to 28 months, later than the 12 months for those without Downs. The treadmill exercise, used about 8 minutes a day, helps to reinforce the underlying pattern of coordination in the legs. This repetition helps build core muscles and support the drive to stand up. After the babies take eight to 10 steps without help, they are outfitted with light reflecting markers. The information from these markers is recorded on cameras, revealing gait, speed and width of their steps. Researchers show walking is occuring six months sooner with the treadmill.http://www.sciencedaily.com/videos/2009/0102-baby_treadmill.htm#
Wednesday, May 27, 2009
Tuesday, May 26, 2009
Eating and Army Crawling
Last Tuesday Ruby's physical therapist helped her to crawl on her tummy by putting her hands on Ruby's arms and showing her how to use her arms to pull herself across the floor.Now Ruby is using her legs to push and her arms to pull herself and she is army crawling all over the place!
I will try and get some video of her to share :)
Wednesday, April 29, 2009
Friday, February 20, 2009
Laughing
Wednesday, January 28, 2009
I have to share this
I have to share this,I was so excited!
I put Ruby down to look at her gym so I get get a few things done and a few minutes later my 7 yr.old daughter came running to get me and said,"Ruby reached up and grabbed the toy!" I went to look and sure enough she had reached up and grabbed the toy above her head and was swinging it.She let go while I was standing there and reached up and grabbed it again! Of course I took some pics. and here they are. Yeehaw! :)
I can't wait to tell the PT tomorrow at Ruby's appointment.
Thursday, January 15, 2009
Hard Work
Then this evening after I changed her diaper I held the toy up over her but would not put it down close to her chest.I was hoping she would extend her arm out to grab it.Instead she lifted both legs straight up over her and started hitting the toy with her feet! She did this several times in a row! So exciting!


















