Wordless Wednesday

Sunday Verse

Lord,let me do the little things
Which may fall to my lot;
Those little inconspicuous ones
By others oft forgot.

If,like the Master,I can give
Myself for those I love,
Rich joy and peace shall come to me,
Sweet rest in heaven above,

I know not when the day shall close;
But when life's curfew rings,
I want my Lord to find me then
Still doing little things. - Unknown


She hath done what she could. (Mark 14:8)

Summer Vacation

Summer Vacation: Time For Fun and Time to Plan  by Kathie Snow

What We Owe

What We Owe Children : Revolutionary Common Sense     Kathie Snow

A Thank You Gift

Ruby's Occupational Therapist is from Australia and all of her family is still there,so she has decided to move back to Australia.She has been a terrific OT and I wanted to give her something to show my appreciation.I decided on this Teacher Assort-"mint" bag  ,I thought it was such a cute idea.I bought a mint colored gift bag, a Thank You card with a mint green envelope ,and assorted mint candies. Instead of printing the poem out I bought a Thank You card and hand wrote  :


Thanks for your commit-"mint" to help me learn.



Thanks for your encourage-"mint" to always do my best.


Thanks for your involve-"mint" in my life.


Thanks for your invest-"mint" of time and energy


to make therapy such a great place to be.


Thanks for making each session an enjoy-"mint".


Thanks for helping to create a nice environ-"mint"


for me to learn and grow.




Everything you have done 


has really “mint” a lot to me!!!


Here is another link with some cute ideas

Reece's Rainbow: An Orphan No More... In Honour of Christyn Joy Patterson

Reece's Rainbow: An Orphan No More... In Honour of Christyn Joy Patterson

Ruby

Make video montages at www.OneTrueMedia.com

Article on Developmental Age

Interesting article on developmental age vs.chronological age by Kathie Snow: Here

Love

Sometimes late at night when I'm trying to get Ruby to sleep and I'm rocking her and she is gently touching my face and hair I cry because I feel such love for her.

Loren posted about this beautiful love that we have for our children here  on her blog.

Words

Ruby has started saying a lot of new words recently and last night while I played Pat a Cake with her she started saying ,"roll,roll" and doing the arm motions when I got to the roll em up part. I sang Itsy Bitsy Spider with her and she did the arm motions for the rain and the sun.I almost couldn't finish singing it for her because I started tearing up.

Here is a list of words she can say:
Daddy
Hi
Bye Bye, which usually sounds like Bubye
Hi,Daddy
Baby
See
See it
Op for stop
Happy
Bobble for Bottle

I'm so excited about her speech, and she speaks very clearly, which is a good sign to me that she hears well.I just cherish every accomplishment she makes because I know they don't come easily for her.

Ruby is growing and a picture from Mother's Day

I put Ruby on lactose free milk and she has finally started putting on weight and is able to have regular bowel movements.I took her for a check-up with her doctor and her weight is in the 25th percentile on the Down syndrome charts,up from the 10th percentile.Ruby still will not eat enough food for me to quit giving her a bottle.I give her lactose free whole
milk,two tablespoons of infant oatmeal cereal,and vitamins in her bottles.

I have already shared my Mother's Day picture on Facebook so a lot of you have already seen it
 but I wanted to post it to my blog too.


Please,remember to keep praying for Sweet Ella as she fights Leukemia.

Wordless Wednesday

Please Pray for Sweet Ella

I got to meet Denise and her beautiful daughter Ella last year when Denise came to Texas for a family wedding.Denise just found out last week that her daughter Ella has Luekemia and chemo has already been started.Please,pray for Denise and her family.

Wordless Wednesday

Ruby Entertaining Herself

Make an on-line slide show at www.OneTrueMedia.com

Heartbroken

I'm just heartbroken over the loss of beautiful  8 year old Carly.She died on Friday.Please pray for her parents during this unimaginable time.
Michelle over at Big Blueberry Eyes has a wonderful idea to have a portrait of Carly commissioned as a gift to Carly's parents.Please go take a look if you are interested in donating towards this cause. http://mdbeau.blogspot.com/2010/04/doing-something.html

Wordless Wednesday

Stalker Mom

My husband and I went and did our grocery shopping on Saturday.We shop at Sam's warehouse and when we go in we each get a shopping cart and start filling them up.We usually take a couple of the kids with us and leave the others at home with our teenagers.This time out we just took our 6 year old daughter and Ruby with us.I always carry Ruby on my back in her Ergo carrier.Ruby loves riding on my back in the carrier,she looks around and chatters and sings,peaks out around my back and calls for her daddy, pats my back and runs her fingers in my hair,and then by the end of shopping has fallen sound asleep.

We were about halfway through shopping, I had my cart packed with groceries and my 6 yr old had tired of walking and was now in my cart, when in the back of the store I saw a young woman who had Down syndrome, and an older woman who I assumed was her Mother. They walked past me and I looked over at my husband and smiled. He whispered to me "Say something to them if you want."
So off I go, trying to catch up with the Mother and daughter, me with Ruby on my back and a full cart of groceries and a 6 yr old! I got close enough to say something and the Mom answered her cell phone.Well I couldn't be rude and interupt, so I just kept walking slowly behind them. The Mom was still on the phone and she took off on a jog, the daughter started running right along with her and they turned down a row and were out of sight. Now I'm thinking ok, just give up. But I couldn't, I had to say something to them.
I always miss opportunities like this and I didn't want that to happen again.
I went down the row and out the other side, looking back and forth, and finally saw them at the front of the store at a check out. I could see that it must have been the Dad that called on the phone, saying hurry I'm at the front of the line now. Slowly I walked up, thinking what in the world will I say, and these people are gonna think I'm looney. I walked up to the Dad who was standing on the outside of their flatbed cart and said,"Excuse me sir,is this your daughter?" He looked at me kind of sideways and said,"Why yes she is." I said smiling,"Well I just wanted to say Hi because I have a special daughter too," and I turned a little and pointed to Ruby on my back. At that moment seeing the smiles light up their faces made my crazy chase through the store worth it. I asked the Mom how old her daughter was and she told me she was 30,she then said how beautiful Ruby was and also noticed my other daughter in my cart and said she was beautiful too.I smiled at the young woman with Ds and said this is my baby,Ruby.She looked up and smiled at me and started smiling at Ruby and patting her.I didn't want to keep them because I could see that they were almost done checking out so I said,I just wanted to say Hi and started to walk away. Ruby was turning and looking at them and they were waving and saying goodbye to her.
I wish I had left my blog address with them or my cell number or something. I think I'm going to make up and print out a few cards to give when I meet other parents.
When I told my 15 year old daughter this story she smiled at me and said," Mom, your a stalker." Yep, that's me :)

My Little Laundry Helper

Beautiful

Repost- Altered Plans

ALTERED PLANS
By: Author Unknown

I've found that God has altered plans I made first starting out,

And though it's clear that He knows best...there have been times of doubt.

The work I do is not the work I really planned on doing,

And many people in my life weren't always of my choosing.

I know for sure that it is true...God has a plan for me,

The paths He's led me down in life have always been the key...

To lessons learned and growing,that I would not have done,

The heartaches and the happiness,the battles fought and won.

Looking back on where I've been,

I've realized just one thing.

Life isn't something that you plan...it's accepting what it brings.

Wordless Wednesday a Day Early

Wordless Wednesday

See and Learn-First Word Pictures

Ruby's speech therapist is using a program like this with Ruby.Just thought I would share the link

See and Learn

The Winner of CSN Giveaway

The winner of my Giveaway is Cathy at A walk in Lily's Garden!Congratulations Cathy I hope you enjoy the crock pot!

Wordless Wednesday

Mom homeschools her daughter who has Down syndrome

In His Care: Our Story of Raising a Child with Down Syndrome
By Beth Grove

I was hearing my doctor�s voice, but it seemed as if he were talking to me through a tube, and the reality of what he was telling me was too much to comprehend. His voice then became clearer as I heard him say ��and all these symptoms suggest that your baby has Down syndrome.� He went on to say more but the words �Down syndrome� bounced around in my mind like one of those Super Balls I played with as a child. How could this be happening?

Go here to read the rest of this touching story:
http://homeschoolenrichment.com/community/pub9990289168264.cgi?itemid=9990289171917

Celebrate!

Make video montages at www.OneTrueMedia.com

World Down Syndrome Day 2010

Down Syndrome International has officially earmarked 21 March as World Down Syndrome Day. The date was chosen to signify the uniqueness of Down syndrome in the triplication (trisomy) of the 21st chromosome and is used synonymously with Down syndrome. Commemoration of World Down Syndrome Day started on 21 March 2006.

Ruby Talking

Video by Ruby's 15 year old sister.

Make an on-line slide show at www.OneTrueMedia.com

CSN Store Giveaway

As a mom of many I like it when I can do something that helps make my life a little easier.One of the things that I like to use is my crock pot, especially on those super busy days when it is great to come home and open the door to the good smells of a supper already prepared.

The good people at CSN Stores contacted me and offered me an item to giveaway.I'm excited to giveaway this Hamilton Beach Stay or Go 6 quart slow cooker.

This Giveaway is open to residents of the United States and Canada.

If you would like to enter the giveaway just go to the CSN Store and then come back and tell me about something you liked.

For extra entries leave me separate comments:

2 entries: Follow my blog

1 Entry:Blog it.

1 Entry:Post it on Facebook

1 Entry:Post on Twitter

The Giveaway starts today and ends on March 27th

I will be using Random.org to pick the winner.You will have 48 hours to reply to my e-mail if you are the winner.I will go to the next winner if you do not reply.

Item will be shipped to you from CSN.

I did not receive compensation in any form for this Giveaway.

Toddler Beds

In my previous post I talked about looking at some kids beds and that got me to thinking about what kind of bed Ruby will need when she graduates out of her baby bed.I thought this

toddler bed was unique,it will sit up into a chair.

For you ladies that have a child with Down syndrome that have already moved out of their crib what type of bed do you have for your child?Toddler or regular twin and what do you feel is safest?Do you have some type of rail to keep them from falling out?

I think it might be awhile before Ruby moves to a bed other than her crib simply because she is so small,about the size of a one year old.If your child is still in a baby bed what do you plan on putting them in when they need to graduate from crib to big kid bed?

Dolls,Signs, Rockers and Beds

Ruby adores her baby dolls.She can clearly say "Baby" and has also learned the sign for baby.She has many board books with babies in them and she turns the pages and points at the pictures and says,"Baby" and then signs baby.

Ruby has been sick with a cold and I have been having to wipe her nose quite often.Yesterday she sat playing with one of her baby dolls and picked up the cloth that I had been using to keep her face clean and she wiped her doll's nose.So sweet!

I have been so happy to see Ruby using the signs she is learning.She signs for her milk now instead of crying for it.She looks at me and signs 'Milk 'and then holds her arm out towards the kitchen and signs 'Milk'again.She has even added to her sign for 'Bubbles' by touching her lips with her fingers and then holding her hand away from her face and making the sign for 'Bubbles'.

I am thinking about getting Ruby a little rocking chair because she really liked a rocking chair that her Auntie has at her house.I found this one that I think might be perfect because Ruby would also be able to put her baby doll next to her ,I found it here.I also like this precious rocking horse.

After I looked at rockers I looked at the kids beds this cute Dora bed caught my 6 year old daughter's eye.She loves anything with Dora on it.

I always wanted a canopy bed when I was a little girl and thought some of these were gorgeous.

Thanks!

I have been offline for the last couple of days because Ruby and I have a terrible cold.I just got online and saw all the great advice for Ruby's dry skin!Thanks so much to all who commented on my previous post :) It's so great to be able to turn to all of you wonderful ladies!

Dry Skin- Help!

Ruby has just recently started having some issues with extremely dry chapped skin on different areas of her body.I think it could be from a change in her bath soap.
Do any of your children have that? What do you use?