She has been receiving respiratory therapy with a device called,The Vest Airway Clearance System.The Vest has really helped Ruby to be able to clear the mucus out of her lungs,it compresses and releases the chest wall up to 25 times per second helping to create mini-coughs to dislodge the mucus.We were told that The Vest is used with Cystic Fibrosis patients.I was impressed with this little device.Ruby doesn't like it so much though.Poor little girl,she whines the whole 12 minutes of treatment,and because the the vest is inflating and deflating so fast it shakes her and makes her voice sound like a lamb baaing.
Ruby is also having to have oxygen,the most she has had to have is 2 liters, now she is down to 1/2 a liter.She has started drinking some fluids.The doctors are telling us if we can just get her off the oxygen she can come home.
I took Ruby's sisters to visit her tonight and she was so happy to see them.They had not seen each other since Ruby had gone to the hospital because they had all been sick with the Flu,too. When we got there Ruby's respiratory therapist was in the room and Ruby was crying,but as soon as she saw her sisters she stopped and smiled real big and said,"Hey,there!" The girls brought Ruby some stuffed animals and Ruby said,"Ooh,thank you!"
My husband has been so great all this time and has spent almost every night with Ruby.
I will be sooooo happy when Ruby can come home.I miss her pulling all the books off the shelf in the living room.The bookshelf just looks way too neat
.We all miss reading to her and wondering what she is getting into now.
I miss her telling me,"I be back," when she leaves the room I'm in.I miss her calling out for me saying,"Mom,mom!"
Oh,and Ruby is on the sixth floor at the children's hospital.The symbol and name of the sixth floor is a Monarch butterfly.Butterflies are the symbol for Down syndrome.Way,cool.
|Ruby and' Bibiss' (Elizabeth)|